#EndoTheStigma – MK’s Story

1 in 10 women suffer from endometriosis. In last week’s blog post, I delved into endometriosis and how it has affected me. This week, I wanted to share another endometriosis warrior’s story on my blog.

Interview with MK:

I am so happy that you agreed to share your story with me and want to thank you for taking the time to answer my questions.

Tell me a little about yourself.

MK: I am a London based celebrity personal stylist and magazine editor

How old were you when you started suffering with endometriosis?

MK: I have struggled with painful periods all my life since my teams but, it really became unbearable when I was 24.

What are your symptoms?

MK: Extremely heavy and long periods, extreme cramps during my period and inflammatory pain. When I’m not on my period, I have cramps and bad inflammatory pain in my pelvic region.

Can you tell me a little bit about your endometriosis diagnosis journey?

MK: I have always had nightmare periods which were heavy and painful. I’d feel nauseated and have diarrhoea in conjunction. This just got worse and I had pelvic inflammation which was awful. I also had terrible period pain and, even when I wasn’t on my period, I would still have inflammatory pain. I kept seeing my doctor and kept pushing that something was not right. Eventually, some years later, I came across the condition Endometriosis. I didn’t know about it before I came across the condition. I then told my doctor that I thought I had endometriosis and it took 5 years to get a diagnosis.

Have you ever had a laparoscopy and if so, how was it?

MK: I have had two. The first was in 2009 and this was to get a diagnosis. Unfortunately, I was told that I had Endometriosis. A few years later I had a second laparoscopy to treat my endometriosis. Both operations went ok.

What kind of treatments have helped you and would you recommend these to others?

MK: One treatment that helped me significantly was going on the pill back-to-back without a break for over a year. It helped supress the condition because I wasn’t having periods.

I also became a vegan and found this change helped decrease the heaviness of my periods, reduced my inflammatory pain and the cramps.

Have you joined an online endometriosis support group and, if so, do you recommend joining one?

MK: No, but it is definitely a good idea.

As you probably know, it can take 8 years to finally get a diagnosis. What advice would you give someone who is waiting to be diagnosed with endometriosis?

MK: My advice would be for them to persist to see their doctor, to push to be seen as soon as possible, and to be diagnosed as soon as they can.

I would also advise them if they are looking to have children to start trying as soon as possible because endometriosis can cause problems with fertility.

I say be as persistent as possible with health services as the time it takes to be diagnosed is a precious time that matters. Keep going back to your doctor even if you feel like you are being a nuisance.

While you are waiting to be diagnosed, look into how nutrition and exercise can affect your symptoms. I know a meat, dairy and egg free diet can make a difference for some women.

Thank you to MK for sharing her endometriosis journey with me on this blog. If you suffer with endometriosis and would like to share your story, DM me on twitter @MeganLauraHarr1.

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